2022 Helen Walker Research Grant For Pompe Disease Now Accepting Appliations
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This […] The post 2022 Helen Walker Research Grant For Pompe Disease Now...
View Article2023 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that the 12th Annual PCMA’s Pull for Pompe will take place on Saturday, April […] The post 2023 PCMA Pull for Pompe Fundraiser appeared first on AMDA Pompe.
View ArticleAmicus Therapeutics Announces Approval and Launch of New Pompe Disease...
PHILADELPHIA, June 27, 2023 (GLOBE NEWSWIRE) — Amicus Therapeutics (Nasdaq: FOLD), a patient-dedicated global biotechnology company focused on developing and commercializing novel […] The post Amicus...
View ArticleRare Artist Contest is now Open for Submissions
Enter July 23rd – August 31st at RareArtist.org The Rare Artist Program was established in 2010 to exhibit the unique […] The post Rare Artist Contest is now Open for Submissions appeared first on AMDA...
View Article2024 Acid Maltase Deficiency Association (AMDA)/International Pompe...
Dear Pompe Warriors and Patient Community, We are excited to announce the upcoming 2024 Acid Maltase Deficiency Associate – International […] The post 2024 Acid Maltase Deficiency Association...
View ArticleCALL to participate in IPA Project Every Move Counts
At International Pompe Day the International Pompe Association kicked off the Every Move Counts project. This project focuses on raising […] The post CALL to participate in IPA Project Every Move...
View ArticleAmicus Therapeutics Announces FDA Approval and Launch of New Treatment for...
PHILADELPHIA, Sept. 28, 2023 (GLOBE NEWSWIRE) — Amicus Therapeutics (Nasdaq: FOLD) today announced that the U.S. Food and Drug Administration […] The post Amicus Therapeutics Announces FDA Approval and...
View Article2023 Helen Walker Research Grant For Pompe Disease Now Accepting Applications
The AMDA is excited to announce a research grant opportunity for applicants who are involved in Pompe Disease research. This […] The post 2023 Helen Walker Research Grant For Pompe Disease Now...
View Article2024 PCMA Pull for Pompe Fundraiser
The AMDA is excited to announce that the 13th Annual PCMA’s Pull for Pompe will take place on Saturday, April […] The post 2024 PCMA Pull for Pompe Fundraiser appeared first on AMDA Pompe.
View ArticleThe role of patient advocacy organizations in shaping medical research: the...
By: IPA posted on: May 27, 2019 The IPA has authored an article titled “The role of patient advocacy […] The post The role of patient advocacy organizations in shaping medical research: the Pompe...
View ArticlePEARL Trial-PrEnAtal enzyme Replacement for Lysosomal storage diseases
University of California – San Francisco (UCSF) is excited to announce the rebranding of their phase 1 clinical trail of […] The post PEARL Trial-PrEnAtal enzyme Replacement for Lysosomal storage...
View ArticleJoin us for the first “Talking With Your Pompe Peeps” session on August 16,...
We are excited to announce that the topic of our first “Talking With Your Pompe Peeps” session is “The Elementary School Experience: […] The post Join us for the first “Talking With Your Pompe Peeps”...
View Article2023 Helen Walker Grant Recipient
Project title: Autophagy control of glycogen in skeletal muscle This year, the AMDA was fortunate to receive 13 grant applications focusing […] The post 2023 Helen Walker Grant Recipient appeared first...
View Article